Today was Brayton's 2nd dilation since the last post. It didn't go as planned. This boy likes to surprise us. At his dilation before today's, they told us we could start coming bi-weekly! The last dilation went very smoothly, and despite the fact he hadn't had one in 2 weeks, he was easy to dilate, and it hadn't shrunk down. Progress. We were thrilled.
Today on the other hand, they told us it was difficult to dilate, and had constricted down a good amount. Afterwards, he could not maintain his oxygen, and after the xray, they determined that it looked like they had collapsed one of his lungs. The ventilator had only been supplying to one lung, instead of both, causing the other to slowly collapse. He was admitted today to the Pediatric Floor. I am so sad I can't be there with him, to hold him, and make sure he's okay. Daddy is there with him though so he's in good hands. I just pray that he gets better quickly.One more hurdle my boy will overcome though, just one more hurdle. He's tough, he'll do it.
Monday, August 23, 2010
Sunday, August 1, 2010
A few new things.
Life sure throws some crazy things your way. It is up to us in how we face those things, and how we deal and cope. There has been some family issues that have come up within the last week, so I'm sorry if I've been M.I.A lately.
Brayton hasn't had a dilation in almost 2 weeks. The last one he had, he ended up with a fever, and throwing up the day afterwards. Just like the previous weeks before that. Strange coincedence if you ask me. I took him to the Dr's, and they put him on antibiotics, and albuterol 3 times a day. They said his lungs sounded really junky, more so than what is normal for him. They asked us to come back 3 days afterwards to have him checked again. No more fever or vomiting, but still really junky sounding and a nasty cough. He was put on lung steroids, and the local pediatrician he sees, contacted UCSF and recommended that surgery be postponed. UCSF agreed, considering the circumstances. Today, he is still sick. He is crankier than usual, runny nose, and still doesn't sound quite right. I'm getting pretty concerned, and wondering if his body just isn't tolerating the procedures well any more, or if this is just some fluke.
He is doing well other than that, and has been referred to a G.I. speciailist because our pediatrician wants to attempt bolus feeds, instead of continuous feeds, since we constantly find him (while he's sleeping) with his cord wrapped around him-body, neck, etc. It's scary to think what could happen if we don't check on him at the right time throughout the night if it happens to be wrapped around his neck.
He had a testicular ultrasound last week, and one of his testies, is still undescended, and the other is a sliding testicle. It doesn't stay in the scrotum like it should, it goes up and down, so both will be needing surgery. Poor little man! We will be scheduling that surgery as well.
I just hope he feels better soon. It's so sad to see your little ones not feeling well.
Brayton hasn't had a dilation in almost 2 weeks. The last one he had, he ended up with a fever, and throwing up the day afterwards. Just like the previous weeks before that. Strange coincedence if you ask me. I took him to the Dr's, and they put him on antibiotics, and albuterol 3 times a day. They said his lungs sounded really junky, more so than what is normal for him. They asked us to come back 3 days afterwards to have him checked again. No more fever or vomiting, but still really junky sounding and a nasty cough. He was put on lung steroids, and the local pediatrician he sees, contacted UCSF and recommended that surgery be postponed. UCSF agreed, considering the circumstances. Today, he is still sick. He is crankier than usual, runny nose, and still doesn't sound quite right. I'm getting pretty concerned, and wondering if his body just isn't tolerating the procedures well any more, or if this is just some fluke.
He is doing well other than that, and has been referred to a G.I. speciailist because our pediatrician wants to attempt bolus feeds, instead of continuous feeds, since we constantly find him (while he's sleeping) with his cord wrapped around him-body, neck, etc. It's scary to think what could happen if we don't check on him at the right time throughout the night if it happens to be wrapped around his neck.
He had a testicular ultrasound last week, and one of his testies, is still undescended, and the other is a sliding testicle. It doesn't stay in the scrotum like it should, it goes up and down, so both will be needing surgery. Poor little man! We will be scheduling that surgery as well.
I just hope he feels better soon. It's so sad to see your little ones not feeling well.
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