What a Day

Today was a mixed bag of emotions. I was finally taking my behind the wheel drivers test, but right before heading out the door, my husband calls. He was fired today. It's just amazing how many tests & trials we have been through these past couple years. I'm trying not to let it get to me too much, because my husband is a worker, and always finds something new when another doesn't work out. I'm trying to keep the hope that this won't have us down for too long. The trips for San Francisco-defintely compromised now, but we will do our best to make it work. Rick filed an unemployment claim today, and we have both been searching the classifieds, craigslist, and yahoo jobs for some opportunities. Tomorrow, turning in applications.

On a lighter side, I passed my driving test, and am now an official, legal, licensed driver. Feels amazing to have it-after 24 long years! I can get things accomplished now, and not have to depend on anyone else. It's about dang time!

We couldn't make it to Brayton's dilation on Monday. Not good, but we are trying to get it in somehow this Friday, and we would stay through the weekend and have next weeks dilation done on Monday like regular. We are waiting on the surgeon's call to okay this. Hopefully we can pull it off.

Well, off to snuggle with my husband and be grateful for the things we do have.

One more down!

Brayton had a dilation on Tuesday, and it all went well. They got him dilated up to a 38. The surgery seemed to go quickly this time, and even though he was cranky at first, he seemed to snap out of faster than usual also. I hate that he goes through all of this, but I sure do admire that kiddo for his strength. They said in the future, we will begin bi-weekly dilations, then monthly, and then see how it goes. I can't wait to get started with that. The surgery before last, they removed the tube from Brayton's nose, so it seems like things are taking steps in the right direction. He has been eating purees, and things like oatmeal. He's enjoying that for sure.

We had his 2 year check up yesterday, and he is doing really well. She was surprised at how he caught up so well, the only thing he is behind on is speech. He is talking but only single words. We are going to be referred to speech therapy, and for a hearing evaluation (although his hearing has proved to be fine in the past.) He also needs to get a testicular ultrasound to determine if the left one has come down or if he still needs surgery with urology. Might as well get that taken care of while we're going down there weekly.

Getting closer

Rick & Brayton got home from the dilation on Monday. It went really well! They took the tube out of Brayton's nose. We are all so happy about that one. Also, the esophagus was still the same size as last weeks (also good news!) so it was a 36. They had told us he wouldn't need surgery next week, just a swallow study, but we got a call yesterday switching it back to surgery. The surgeon said he didn't feel comfortable missing a week, he was afraid it would ruin things. Bummer, but at least we're getting closer to the end of these weekly dilations. I tell myself that every single time we are finished with one, or heading to another. Just a little longer.

We are busy planning Destiny's 7th birthday party which is next weekend, and my sister, who is here visiting, will be turning 16 on the 15th, so I am trying to do something for her as well. Money is tight due to the trips, I honestly don't know how we're getting to San Fran this weekend, but somehow, it always works out!

My husband is sick right now. Wasn't feeling well yesterday and took a half day for work. I woke up to him vomiting at 5am, and he was very hot, so I took him to the E.R. It's not the flu, something viral. Hopefully it passes quickly, and he doesn't share it with any of the kiddos.

Well, I'm off to try to get things done!