We got home from San Francisco around 9pm last night. The surgery went well, and they went from a 16 to a 28. Finally, something! They switched nostrils with the string, and that's it. He is miserable with the string in this side for some reason, seems to irritate him more, and there is some slack behind his ear, and it's driving him crazy. They didnt send us home with any Tegaderm to tape it down with! Ugh. He sounds prety bad today also, so I left a message with his home nurse who stops by once a month to come check his oxygen levels. Hopefully, he can.
I also recently was told about a hospital in a different state who specializes in cases like Brayton's. I contacted them last night, but they were closed. I left a message, and they returned my call today. Sounds promising.
Well my baby is sleeping in my arms, sounding wheezy and extremely irritable. I will update later.
About Me
- Aimee
- I am a stay at home mom of three amazing children. Destiny, Nikiya & Brayton. I have been married to a wonderful man named Rick for 4 years. Our son was born with a birth defect called Tracheoesophageal Fistula and Esophageal Atresia. He was hospitalized for the first 9 months of his life and went through numerous surgeries and has overcome many, many things. We have had a lot of ups and downs, and surprises thrown at us, but as a family, we always pull through.
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