Today I received a phone call from the CPS worker telling me he had closed the case weeks ago, but wanted to let me know that there are funds available to me to assist with the trips! He wants me to make a guesstimate of how much we can pay & how much we'd like the request to be for. He said there are no guarantees the requested amount will be granted but that there should be something to help no matter what. I am thinking of possibly requesting half the amount of each trip for the requested grant. That would help us tremendously.
Then, about 20 minutes ago, I get a call from pediatric surgery, and at today's meeting, Brayton was discussed. They all figure there is about 3 more months, maximum, of weekly surgeries. It could be less. I won't get my hopes up for less, but even 3 months sounds good to me. Knowing there is an end to all of this, is such a relief. I hope it all goes according to plan. At his last surgery, he was dilated to a 36 which is fantastic. She said that most kids don't need dilations after they've reached the point they've been trying to get to, but that some may need a couple annually. I will take that over weekly any day! I am excited to think my son could be done with these surgeries in the near future, and that he won't have to go through that discomfort every week.
After these calls today, I can say my day is going really well! :)
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Aimee, I'm so happy for you and B! I can't wait until you post that you are done with the last surgery, but until then we will be praying for you!
ReplyDeletelight at the end of a very dark tunnel!
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