Havent updated in a while

It's been a long time since I've last updated. Things were going pretty well with Brayton and life was moving forward.

Brayton had a stent placed in Sept to help his esophagus remain open, and to help with the weekly SF trips. This last Friday, Brayton was lethargic and feverish. We took him to the pediatrician, and his oxygen levels were in the 50's. An ambulance was called, and he was placed on oxygen immediately. He was taken tot he emergency room, and put on a nasal canula and an oxygen mask. He was non-responsive, and things were not looking good. San Francisco was called, and they sent a flight team up to pick him up.

By the time they got to the hospital, they needed to place him on a ventilator. He has been here since, and what caused all this, was that the stent they had placed eroded, and went through his esophagus and into a lung. He had to undergo surgery to place chest tubes, and to remove the stent. He has been touch and go since then, and the surgeon had told us it was a very real possibility that he may die. He is very sick. His kidneys are failing so he was put on dialysis, which seems to be helping. He has a hole in one lung from the stent, his esophagus is completely ruined and probably will have to be reconstructed a long time from now, if he makes it through everything. There was a very bad infection in his chest due to the perforation. He is on an oscillator (like a vent but normally used for preemies/small babies), receiving blood transfusions, and on many medicines. They told us he is the sickest baby they have in the PICU.

Please keep him in your thoughts. I can't imagine my life without my boy. He's strong and we are hoping he will get through all of this.